Arnstein, Sherry R. (1969), “A Ladder of Citizen Participation”, Journal of the American Institute of Planners, 35(4), 216-224. DOI: 10.1080/01944366908977225.
Barnett, Julie; Burningham, Kate; Walker, Gordon; Cass, Noel (2012), “Imagined Publics and Engagement around Renewable Energy Technologies in the UK”, Public Understanding of Science, 21(1), 36-50. DOI: 10.1177/0963662510365663.
Batel, Susana; Devine-Wright, Patrick (2015), “Towards a Better Understanding of People’s Responses to Renewable Energy Technologies: Insights from Social Representations Theory”, Public Understanding of Science, 24(3), 311-325. DOI: 10.1177/0963662513514165.
Broerse, Jacqueline E. W.; Elberse, Janneke E.; Caron-Flinterman, J. Francisca; Zweekhorst, Marjolein B. M. (2010), “Enhancing a Transition Towards a Needs-Oriented Health Research System through Patient Participation”, in Jacqueline E. W. Broerse; Joske F. G. Bunders (orgs.), Transitions in Health Systems: Dealing with Persistent Problems. Amsterdam: VU University Press, 181-205.
Burawoy, Michael (2005), “For Public Sociology”, American Sociological Review, 70, 4-28.
Carvalho, António; Nunes, João Arriscado (2018), “Assembling Upstream Engagement: The Case of the Portuguese Deliberative Forum on Nanotechnologies”, NanoEthics, 12(2), 99-113.
Cass, Noel (2006), Participatory-Deliberative Engagement: A Literature Review. Manchester: School of Environment and Development, Manchester University.
Clamote, Telmo Costa (2014), “Participando pelo avesso: associações de doentes na composição de um padrão de regulação intersticial em saúde”, in Mauro Serapioni; Ana Raquel Matos (orgs.), Saúde, participação e cidadania. Experiências do Sul da Europa. Coimbra: CES/Almedina, 213-231.
Cooper, Liz; Coote, Anna; Davies, Anne; Jackson, Christine (1995), Voices Off: Tackling the Democratic Deficit in Health. London: Institute for Public Policy Research.
Council of Europe (2000), Recommendation No. R (2000) 5 of the Committee of Ministers to Member States on the Development of Structures for Citizen and Patient Participation in the Decision-Making Process Affecting Health Care. Strasbourg: Council of Europe.
Crisóstomo, Sofia (2009), O envolvimento das pessoas que vivem com VIH/Sida nas políticas públicas de saúde. Lisboa: ISCTE – Instituto Universitário de Lisboa.
Crisóstomo, Sofia; Lima, Luísa (2013), “O envolvimento das pessoas que vivem com a infeção pelo VIH na resposta à epidemia: o caso das políticas de saúde”, Ação & Tratamentos, 30, 6-7.
Crisóstomo, Sofia; Matos, Ana Raquel; Borges, Marta: Santos, Margarida (2017), “MAIS PARTICIPAÇÃO melhor saúde: um caso de ativismo virtual na saúde”, Forum Sociológico, 30, 7-16. DOI: 10.4000/sociologico.1729.
Crisóstomo, Sofia; Santos, Margarida (2018), “Participação pública na decisão em saúde. O que temos aprendido?”, Revista Portuguesa de Farmacoterapia, 10(2-3), 118-120.
Department of Health (2001), Involving Patients and the Public in Healthcare. London: Department of Health.
Devictor, Bernadette (2010), “Les conférences régionales de santé et de l’autonomie (CRSA): qu’en sera-t-il de la démocratie sanitaire en région?”, Santé Publique, 22(1), 121-129. DOI: 10.3917/spub.101.0121.
Direção-Geral da Saúde (2004), Plano Nacional de Saúde 2004-2010: mais saúde para todos. Lisboa: Direção-Geral da Saúde.
Direção-Geral da Saúde (2012), Plano Nacional de Saúde 2012-2016. Lisboa: Direção-Geral da Saúde.
Direção-Geral da Saúde (2015), Plano Nacional de Saúde: revisão e extensão a 2020. Lisboa: Direção-Geral da Saúde.
Entradas, Marta (2016), “What is the Public’s Role in ‘Space’ Policymaking? Images of the Public by Practitioners of ‘Space’ Communication in the United Kingdom”, Public Understanding of Science, 25(5), 603-611.
European Commission (2007), White Paper. Together for Health: A Strategic Approach for the EU 2008-2013. Brussels: European Commission.
European Medicines Agency (2011), The Role of Patients as Members of the EMA Human Scientific Committees (EMA/351803/2010). London: European Medicines Agency.
European Patients’ Forum (s.d.), The Value+ Policy Recommendations: Patient Involvement in Health Programmes and Policy. Brussels: European Patients’ Forum.
European Patients’ Forum (2015), “Patient Empowerment Campaign”. Consultado a 05.07.2018, em www.eu-patient.eu/campaign/PatientsprescribE.
Filipe, Ângela Marques; Nunes, João Arriscado; Matias, Marisa (2010), “Os novos actores colectivos no campo da saúde: o papel das famílias nas associações de doentes”, Alicerces, III(3), 119-128.
Fiorino, Daniel J. (1990), “Citizen Participation and Environmental Risk: A Survey of Institutional Mechanisms”, Science, Technology, & Human Values, 15(2), 226-243.
FFMS – Fundação Francisco Manuel dos Santos (2015), “Taxa de abstenção nas eleições para a Assembleia da República: total, residentes em Portugal e residentes no estrangeiro”. Consultado a 10.10.2018, em www.pordata.pt/DB/Portugal/Ambiente+de+Consulta/Tabela/5757483.
Florin, Dominique; Dixon, Jennifer (2004), “Public Involvement in Health Care”, BMJ, 328, 159-161. DOI: 10.1136/bmj.328.7432.159.
Garthwaite, Kayleigh; Bambra, Clare (2017), “How the Other Half Live”: Lay Perspectives on Health Inequalities in an Age of Austerity”, Social Science & Medicine, 187, 268-275.
Gianolla, Cristiano (2017), “Democratisation beyond the Crisis of Liberalism, Bringing Civil Society within the State”, Revista Crítica de Ciências Sociais, 114, 187-206. DOI: 10.4000/rccs.6820.
Gonçalves, Maria Eduarda (2002), “Implementation of EIA Directives in Portugal”, Environmental Impact Assessment Review, 22(3), 249-269. DOI: 10.1016/S0195-9255(02)00005-7.
Gonçalves, Maria Eduarda; Castro, Paula (2009), “Local Is Beautiful? Governing Science-Society Relations in Europe”, Portuguese Journal of Social Science, 8(2), 191-207. DOI: 10.1386/pjss.8.2.191/1.
Hanau, Carlo; Gattei, Laura (1998), “I Comitati consultivi mist i nell’azienda sanitaria Città di Bologna”, L’Arco Di Giano, 16, 180-192.
Haraway, Donna (1988), “Situated Knowledges: The Science Question in Feminism and the Privilege of Partial Perspectives”, Feminist Studies, 14(3), 575-599.
IAPO – International Alliance of Patients’ Organisations (2005), Policy Statement. Patient Involvement. London: IAPO.
Jasanoff, Sheila (2004), States of Knowledge. The Co-Production of Science and Social Order. London/New York: Routledge.
Kickbusch, Ilona; Gleicher, David (2012), Governance for Health in the 21st Century. Copenhagen: WHO Regional Office for Europe.
Knudsen, Jørgen K.; Wold, Line Camilla; Aas, Øystein; Haug, Jens Jacob Kielland; Batel, Susana; Devine-Wright, Patrick; Qvenild, Marte; Jacobsen, Gerd B. (2015), “Local Perceptions of Opportunities for Engagement and Procedural Justice in Electricity Transmission Grid Projects in Norway and the UK”, Land Use Policy, 48, 299-308. DOI: 10.1016/j.landusepol.2015.04.031.
Loeber, Anne; Griessler, Erich; Verstee, Wytske (2011), “Stop Looking up the Ladder: Analyzing the Impact of Participatory Technology Assessment from a Process Perspective”, Science and Public Policy, 38(8), 599-608.
MAIS PARTICIPAÇÃO melhor saúde (2016a), Carta para a participação pública em Saúde. Consultado a 05.07.2018, em www.participacaosaude.com/carta-participacao-publica-em-saude.
MAIS PARTICIPAÇÃO melhor saúde (2016b), 10+ Participação pública em Saúde. Consultado a 05.07.2018, em www.participacaosaude.com/10-prioridades.
Mannarini, Terri; Fedi, Angela; Trippetti, Stefania (2009), “Public Involvement: How to Encourage Citizen Participation”, Journal of Community & Applied Social Psychology, 20(4), 262-274. DOI: 10.1002/casp.1030.
Matos, Ana Raquel (2016), “‘Eu participo, tu participas… nós protestamos’: ações de protesto, democracia e participação em processos de decisão”, O Público e o Privado, 27, 119-136.
Matos, Ana Raquel; Serapioni, Mauro (2017), “O desafio da participação cidadã nos sistemas de saúde do Sul da Europa: uma revisão da literatura”, Cadernos de Saúde Pública, 33(1). DOI: 10.1590/0102-311x00066716.
Ministére des Solidarités et de la Santé (2017), “Conférence nationale de santé”. Consultado a 05.07.2018, em http://solidarites-sante.gouv.fr/ministere/acteurs/instances-rattachees/conference-nationale-de-sante.
Ministério da Saúde (1993), Conselhos de saúde: guia de referência para a sua criação e organização. Brasília: Ministério da Saúde.
Ministerio de Sanidad y Consumo (2007), Marco Estratégico para la mejora de la Atención Primaria en España: 2007-2012. Madrid: Ministerio de Sanidad y Consumo.
Minkler, Meredith; Wallerstein, Nina (orgs.) (2008), Community Based Participatory Research for Health: Process to Outcomes. San Francisco, CA: Jossey Bass [2.ª ed.].
Mitton, Craig; Smith, Neale; Peacock, Stuart; Evoy, Brian; Abelson, Julia (2009), “Public Participation in Health Care Priority Setting: A Scoping Review”, Health Policy (Amsterdam, Netherlands), 91(3), 219-228. DOI: 10.1016/j.healthpol.2009.01.005.
NHS England (2013), Transforming Participation in Health and Care: “The NHS Belongs to Us all”. United Kingdom: National Health Service.
Nordin, Ingemar (2000), “Expert and Non-Expert Knowledge in Medical Practice”, Medicine, Health Care, and Philosophy, 3(3), 297-304. DOI: 10.1023/A:1026446214010.
OECD – Organisation for Economic Co-operation and Development (2001), Citizens as Partners: Information, Consultation and Public Participation in Policy-Making. Paris: OECD Publishing. DOI: 10.1787/9789264195561-en.
Pestre, Dominique (2008), “Challenges for the Democratic Management of Technoscience: Governance, Participation and the Political Today”, Science as Culture, 17(2), 101-119.
Popay, Jennie; Williams, Gareth (1996), “Public Health Research and Lay Knowledge”, Social Science & Medicine, 42(5), 759-768.
Rabeharisoa, Vololona; Callon, Michel; Filipe, Angela Marques; Nunes, João Arriscado; Paterson, Florence; Vergnaud, Frédéric (2014), “From ‘Politics of Numbers’ to ‘Politics of Singularisation’: Patients’ Activism and Engagement in Research on Rare Diseases in France and Portugal”, BioSocieties, 9(2), 111-128.
Santos, Boaventura de Sousa (1995), Toward a New Common Sense. Law, Science and Politics in the Paradigmatic Transition. New York: Routledge.
Santos, Margarida; Batel, Susana; Gonçalves, Maria Eduarda (2018), “Participar está na moda: uma abordagem psicossocial dos orçamentos participativos”, Psicologia & Sociedade, 30. DOI: 10.1590/1807-0310/2018v30165726.
Schiefer, Ulrich; Teixeira, Paulo Jorge; Monteiro, Susana (2006), MAPA – Manual de facilitação para a gestão de eventos e processos participativos. Estoril: Princípia.
Scutchfield, F. Douglas; Hall, Laura; Ireson, Carol L. (2006), “The Public and Public Health Organisations: Issues for Community Engagement in Public Health”, Health Policy, 77(1), 76-85. DOI: 10.1016/j.healthpol.2005.07.021.
Serapioni, Mauro; Matos, Ana Raquel (orgs.) (2014a), Saúde, participação e cidadania: experiências do Sul da Europa. Coimbra: Edições Almedina.
Serapioni, Mauro; Matos, Ana Raquel (2014b), “Citizen Participation and Discontent in Three Southern European Health Systems”, Social Science & Medicine, 123, 226-233. DOI: 10.1016/j.socscimed.2014.06.006.
Swyngedouw, Erik (2015), “Urbanization and Environmental Futures: Politicizing Urban Political Ecologies”, in Tom Perreault; Gavin Bridge; James McCarthy (orgs.), Handbook of Political Ecology. London/New York: Routledge, 609-619.
Telford, Rosemary; Beverley, Catherine A.; Cooper, Cindy L; Boote, Jonathan D. (2002), “Consumer Involvement in Health Research: Fact or Fiction?”, British Journal of Clinical Governance, 7(2), 92-103. DOI: 10.1108/14664100210427606.
Terzi, Alessio (2013), The Patients’ Involvement in Health Policies in Europe. Roma: Active Citizenship Network.
Tritter, Jonathan Quetzal; McCullum, Alison (2006), “The Snakes and Ladders of User Involvement: Moving beyond Arnstein”, Health Policy, 76(2), 156-158. DOI: 10.1016/j.healthpol.2005.05.008.
UK Parliament (2012), Health and Social Care Act 2012 (c. 7). London: Stationery Office.
United Nations (2011), Political Declaration of the High-Level Meeting of the General Assembly on the Prevention and Control of Non-Communicable Diseases. New York: UN.
van de Bovenkamp, Hester M.; Trappenburg, Margo J.; Grit, Kor J. (2010), “Patient Participation in Collective Healthcare Decision Making: The Dutch Model”, Health Expectations, 13(1), 73-85. DOI: 10.1111/j.1369-7625.2009.00567.x.
van Thiel, Ghislaine; Stolk, Peter (2013), Background Paper 8.5. Patient and Citizen Involvement. Consultado a 06.07.2018, em www.who.int/medicines/areas/priority_medicines/BP8_5Stakeholder.pdf.
WHO – World Health Organization (2010a), “WHO Evaluation of the National Health Plan of Portugal 2004-2010”. Copenhagen: WHO Regional Office for Europe.
WHO – World Health Organization (2010b), “Portugal Health System Performance Assessment”. Copenhagen: WHO Regional Office for Europe.
WHO – World Health Organization (2011), Declaração Política do Rio sobre Determinantes Sociais da Saúde. Rio de Janeiro: WHO.